News & Press

“Sound of Fashion” Runway Shows Taiwanese Designer, Sami Chen of HappyFish Fashion along with the beautiful Miss America, Nia Franklin to benefit the Cristian Rivera Foundation.

Miss America, Nia Franklin walks the runway  today, in this weeks opening event for the 2019 NYFW. For the first time, 25-year old, Nia Franklin walks alongside Life Size Robots. This rare found idea was put to life by CRF proud supporter and talented Taiwanese Fashion Designer, Sami Chen of HappyFish Fashion. Todays show is in honour of The Cristian Rivera Foundation and all proceeds will help further our search for a cure for DIPG.

Miss America 2019, Nia Franklin Will Walk Alongside Life-Sized Robots at NYFW Benefiting the Cristian Rivera Foundation.

A New York Fashion Week First

Miss America 2019 Nia Franklin to walk the Runway alongside Life Size Robots from Advanced Robot Solutions when Circuit City joins Monster in presenting the “Sound of Fashion” Runway Show Season 5 Benefitting the Cristian Rivera Foundation featuring Taiwanese Designer Sami Chen of HappyFish Fashion

Thursday February 7, 2019 @ 7pm
122 W 27th Street, NY, NY 10010

History will be made this fashion week in NY when 2019 Miss America Nia Franklin https://missamerica.org/titleholders/2019 -new-york/ will walk the runway alongside life size robots from Advanced Robot Solutions https://getrobotsolutions.com showcasing the 5th Season of Monster’s “Sound of Fashion along with Circuit City https://circuitcity.com/shop to benefit the Cristian Rivera Foundation http://cristianriverafoundation.org. This year Monster https://www.monsterstore.com in celebrating its 40th Anniversary, will feature the designs of Taiwanese designer Sami Chen of HappyFish Fashion showing for her 4th time at NYFW.

Monster Products: For the past 40 years, Monster® has been a catalyst for innovation and big ideas. Discovering that cables in hi-fi systems influenced the sound, Head Monster Noel Lee developed Monster Cable – an immediate hit. Monster® engineered the sound of Beats® headphones, and has since become a leading manufacturer of high-performance headphones, all featuring Pure Monster Sound™ technology. Today, the company offers advanced connectivity solutions for professional musicians, home entertainment and consumers alike and sponsors the Sound of Fashion each season at New York Fashion Week to bring together music and fashion like never before.

Circuit City comes with a long history of tech innovation, dating back to the late 1940’s, and intertwine s this deep rooted knowledge and know-how into the modern shopping experience. We believe in making the first move, encouraging gusto, and disrupting t he way that technology and commerce connect. Their personalized shopping platform is designed to give you the one -on-one customized experience you would get as if you had a personal shopping assistant by your side. Circuit City is extremely proud to have such a reputable brand name to work under and we don’t take this responsibility lightly. And while they are outrageously loyal to the prestige of this strong brand name, they also acknowledge that fun and exploration are essentially to maintaining any long-lasting, modern, and forward-thinking brand identity.

Advanced Robot Solutions is the official master distributor for Future Robot, a South Korean service robotics company. The FURo-D model is currently the most popular robot on the market, with robots located in airports, hospitals, doctor’s offices worldwide.

Cristian Rivera Foundation: Cristian Rivera’s journey and determination inspired his father, John “Gungie” Rivera, to start the Cristian Rivera Foundation, a New York City -based 501(c)(3) not-for-profit organization, that is committed to finding a cure for Diffuse Intrinsic Pontine Glioma (DIPG) (a form of pediatric brain cancer) through education, program funding and family support. The foundation strives to increase public awareness and understanding of Pontine Glioma, as well as raise funds that will support medical facilities and scientific trials whose primary focus is to find a cure for the disease.

Miss America 2019 Nia Franklin: Nia was crowned Miss Five Boroughs at the age of 23, and then went on to win Miss New York 2018. And was awarded the job of Miss America 2019 on September 9, 2018. Nia has been a teacher and music mentor, and has written over 100 songs, including one she began performing at age five. For the Miss America 2019 competition, Franklin sang “ Quando m’en Vo’” from Puccini’s La Boheme and wowed audiences and judges alike. Nia is a native New Yorker and this will be her first time walking at NYFW.

HAPPYFISH FASHION by Sami Chen will show in her 4th season at New York Fashion Week, following her successful two season premiere with Rolls Royce and Monster. Sami’s gowns and dresses have wowed audiences to live music and even dressed two celebrity show dogs and one talented rabbit on a sk ateboard who made their way down the runway. The dresses drew the full attention of the audience as the press could not get enough of her creations staying after the show to catch more. The show came from the creative inspiration of lead designer Sami Chen. Sami who learned her trade at Shih Chien School of Fashion in Taiwan and has been designing womenswear since childhood. In addition to being an internationally recogniz ed fashion designer, Sami is also an accomplished concert pianist and has won many competitions since the age of 5. “Happy Fish by Sami” was inspired by and symbolizes the joy and freedom associated with her designs along with her state of mind. As a bright star of the ne w fashion world, Sami’s smile and uplifting demeanor is not only evident in her creations, but also her personality. See www.HappyFishSami.com.

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Cristian Rivera Foundation January 2019 Newsletter

 

Jan 2019 Newsletter
Jan 2019 Newsletter

Cristian Rivera Foundation 2019
January Newsletter

What a year it has been!
2018 was a year of growth, a year of change, and another year closer to finding the cure for DIPG!

Our Founder, John “Gungie” Rivera and committee member,
Robert Vazquez, collaborated to write a Children’s book entitled,
“Cristian’s Journey”.

The foundation’s first publication, “Cristian’s Journey”, was released to help raise awareness and inspire people to become involved with the work taking place globally for pediatric brain cancer research.

This beautiful story depicts Cristian’s journey of love and benevolence throughout the big city. This book is a tale about passion and never giving up despite the odds you may face. 100% of the proceeds of the purchase of this book will be donated to pediatric brain tumor/DIPG research and clinical trials. Have you checked it out? Follow this link to purchase the book cristianriverafoundation.org/cristiansjourney.html

In addition to “Cristian’s Journey”, our 2018 events included the following special events, all designed to raise awareness for pediatric brain cancer research:

We launched our 1st Annual Cristian Rivera Foundation “Full Steam Ahead” 5k Walk/Run.

We hosted our 3rd Annual Cristian Rivera Foundation Freestyle Flashback Benefit Boat Ride.

We hosted our milestone 10th Annual Cristian Rivera Foundation Celebrity Gala and honored a variety of celebrities and doctors for their philanthropy. (Check out the Photos and Video of this amazing event).

Thank you for your continued support by attending, sponsoring, and donating to the Cristian Rivera Foundation.

Hosting these events have brought us to monumental milestone’s within the DIPG and medical community. As of the end of 2018, the Cristian Rivera Foundation has donated well over One Million Dollars ($1,000,000) to help support research and clinical trials for pediatric brain cancer/DIPG, and families who have been affected by this disease. Thank you for your love, passion, and for most importantly keeping these young children and their families in mind.

By your giving efforts, we are now closer than we’ve ever been to finding the cure for DIPG. Be proud- this is all possible because of You!

We would like to take the time to express our gratitude to some key players within our Foundation. Thank you to our Board of Directors, Committee Members, and our Committee Friends. Thank you all for your support, your deep desire to finding a cure for DIPG, and your genuine fellowship at our 2018 events. A very special thank you goes to Dr. Mark Souweidance and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Without you all playing a major role within our foundation, none of these milestone’s and accomplishments would have been possible.

One of our clinical trial patients, Lisha, Ayala, has reached a monumental milestone in her life by reaching a 6 year mark with no growth in her tumor! She is living the life of a normal teenager and continues to give hope to the DIPG and medical community. Lisha Ayala reminds us that with faith, your support, and help from the medical community, nothing is impossible. We remain steadfast in doing all that we can to make sure the DIPG children and their families are diagnosis free and we are believing together that we are a few steps closer than we have ever been before.

As you can see, we left 2018 and started 2019 on a great note but January is always a sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG on January 21st, 2007 and lost his Battle to DIPG just two short years later on, January 25th, 2009. Cristian would have been 16 years old had he’d been alive today. In honor of Cristian, our foundation will continue working the “Full Steam Ahead” mentality until we eradicate this disease from our world and no family has to suffer through the process of dealing with a child with DIPG.

You can be a part of the journey of finding a cure for DIPG, and make 2019 the year we say goodbye to this horrible disease. Simply stay connected with us. Join us at our events, share our journey with your family and friends, and please make efforts to our donation. Follow here to view our video that highlights our mission, vision, and objective of the Cristian Rivera Foundation.

Speaking of great supporters and being part of our journey, The Cristian Rivera Foundation highlighted Member of the Month is Committee Friend, Vanessa Rodriguez. Using her experience and resources, Vanessa has been an incredible addition to our team and made valuable contributions to our goals through her hard work and dedication.

Who is Vanessa Rodriguez?
Vanessa, a native New Yorker, is a real estate sales agent with The Corcoran Group. She advises clients at all price points and stages, from first time home buyers to seasoned international investors. She loves the city and all things cultural. She attended St. Jean Baptiste High School in the Upper East Side and graduated from Columbia University. When she’s not working with her clients selling properties or partaking in community events, Vanessa enjoys the small things in life: exploring new restaurants, Broadway theatre, making dinner with family, and going for walks and runs with her 2 doggies – Remy, the Miniature Pinscher and Jimmy, the Boxer.

What does it mean to you to be a part of
the Cristian Rivera Foundation?

It means a lot! I have learned the importance and power in giving back. I am truly honored by being a part of the Cristian Rivera Foundation, it is truly amazing. With the Cristian Rivera Foundation, I am able to help raise awareness and most importantly, give back to DIPG patients. The DIPG patients are children who are helpless when it comes to their health. The least I can do is give back, raise awareness, and be proactive so people are more aware and knowledgeable about the diagnosis.

What are your proudest moments as a Cristian Rivera Foundation Committee Member?
Some of the many proudest moments I have being a committee member is being able to educate others on DIPG and help advocate to spread awareness. I am proud to share with others how DIPG affects children and how I can help find ways to help raise awareness. I am also proud of the contributions I have made in a short period of time through my donations and raising donations through my network.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

 

To give a donation, please visit cristianriverafoundation.org/donation.html.
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundation and like us on Facebook at facebook.com/crisitanriverafoundation
stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available at smile.amazon.com,
Barnes and Nobile and on our website CristianRiveraFoundation.org

Cristian Rivera Foundation
Amazon Smile
Barnes & Noble

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Michael Flatley, Meiling Macias Toro,
Nirav Patel, Paul Pristavec, Rafael Toro,
Ramon E. Javier, Robert Vazquez, Steve Cox,
and Vito Bruno.

 Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Dorota Wallace, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon. 

Supporters:
David Rodriguez, Ginalisa Monterroso,
and Karla De Epstein

 

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Guidestar
Copyright © 2019 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

DAILY NEWS EXCLUSIVE!
Tuesday, November 13, 2018
Cristian Rivera Foundation that battles deadly childhood cancer DIPG marks 10th annual event with a success story

Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)
Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)

The Cristian Rivera Foundation will have a reason to celebrate when it holds its 10th annual fundraising gala to fight a rare childhood cancer on Wednesday, Nov. 14.

The foundation has been on a mission over the past decade to find a cure for diffuse intrinsic pontine glioma, or DIPG, a rare form of deadly brain cancer mainly affecting small children. Each year, roughly 200 children are diagnosed with DIPG, and nearly all usually succumb to the aggressive cancer within 18 months.

But the celebrity-studded gala, at Manhattan venue Capitale, will commemorate a rare success story: 13-year-old Lisha Ayalais, who was diagnosed with DIPG six years ago, has defied the odds and continues to show no growth in her tumor.

”Lisha is doing phenomenal. We are going on 6 years and she is still DIPG-free,” said CRF founder John (Gungie) Rivera. “This is evidence that the work that we are doing — the trials that our doctors are working on — are effective.”

Rivera, a local music producer and promoter, started the foundation in honor of his son Cristian, who passed away from the disease at only 4 years old and is the driving force behind the event.

Though Cristian did not win his battle with DIPG, Rivera continues it on his son’s behalf, raising funds annually to help underwrite clinical trials aimed at treating and hopefully one day curing the condition.

Lisha is currently in one of those trials at Weill-Cornell Brain and Spine Center in Manhattan, working with Dr. Mark Souweidane, a pediatric neurosurgeon specializing in DIPG.

Cristian Rivera and John (Gungie) Rivera) (Handout)
Cristian Rivera and John (Gungie) Rivera) (Handout)

This year’s event, hosted by foundation co-chair Darlene Rodriguez of NBC News, will feature such celebrity guests as Kenan Thompson of “Saturday Night Live.”

Honorees include actor Ramon Rodriguez, who will receive a humanitarian award for his recent work in Puerto Rico with the 100Roofs Project that aims to help those on the island still struggling after last year’s devastating storms by providing carpenters and training locals to become professional roofers.

It was inspiring to see his commitment to Puerto Rico,” Rivera said. “It reminds me that I am not alone in my efforts to make a difference, even when facing major challenges.”

For more info on the Cristian Rivera Foundation, buy tickets to the gala or donate to the fight against DIPG, go to cristianriverafoundation.org.

 

Read More, visit nydailynews.com/life-style/health/ny-ent-viva-cristian-rivera-fund-20181113-story.html

Cristian Rivera Foundation
2018 November Newsletter

 

Nov 2018 Newsletter

Cristian Rivera Foundation 2018
November Newsletter
The 10th Annual Cristian Rivera Foundation Celebrity Gala was held on November 14th, 2018, at Capitale in New York City. 

The event was hosted by Cristian Rivera Foundation board members, Andy Epstein and NBC Anchor, Darlene Rodriguez. The gala was special for The Cristian Rivera Foundation, as we celebrated a decade of raising awareness and support for DIPG research. We also highlighted and honored the following on that special evening:

  • The Cristian Rivera Foundation has donated well over $1,000,000 to DIPG research, clinical trials and to support families.
  • We celebrated a 6th year of life with Lisha Ayala, her tumor has shown no growth and she is responding extremely well to the clinical trials.
  • Actress Rosie Perez presented Actor Ramon Rodriguez with the 2018 Cristian Rivera Foundation Humanitarian Award for his efforts to help rebuild Puerto Rico.
  • Guardian Angels Founder, Curtis Sliwa introduced a new award to the Cristian Rivera Foundation, The Guardian Angel Award.  The Award was presented to Sarah Langbert, Keith Lustman and Ginalisa Monterroso for their dedication in protecting children with DIPG.
  • “Cristian’s Journey”, a children’s book about a young boys passion to spread love and happiness in the Big City, despite being told he was sick, was released on the night of the gala.  The book can be purchased on CristianRiveraFoundation.org, and on Amazon and Barnes and Noble respective websites.  Any book purchased through The Cristian Rivera Foundation Website will be autographed by the Authors, Robert Vazquez & John Rivera. 
  • CRF Committee Member & Emmy Award Winning
    Kenan Thompson, of Saturday Night Live, introduced our DIPG survivor Lisha Ayala to the audience. 
  • CRF Committee Member and Editor at the New York Daily News, Robert Dominguez presented Dr Mark Souweidane with the CRF 2018 Vision of Hope Award.

 

The last month of the year is here!  Consider making a charitable contribution to The Cristian Rivera Foundation before the New Year.  Your contribution is tax deductible and will help fund DIPG clinical research and the innovative clinical trials being conducted by Dr. Mark Souweidane. 

We would like to close out 2018 by thanking each and every one of you for supporting The Cristian Rivera Foundation.  It is through your support that we are making monumental strides in DIPG research and giving children, like Lisha Ayala, a chance to fulfill their dreams. 

Help us start 2019 STRONG!  How You Ask?  It’s Simple, take a few moments to do one (or all of the following)

  • Raise Awareness by sending this newsletter to your family, friends and coworkers.
  • Visit our Website CristianRiveraFoundation.org and take a look at all the amazing events that we host throughout the year.
  • While you are on our website, take a moment and make a small donation, purchase a wristband or a copy of “Cristian’s Journey”.  100% of the net proceeds are steered to DIPG research and clinical trial.
  • Contact us at info@cristianriverafoundation.org if you would like to take part in our events, want to Volunteer or become a member of the CRF committee. We host an annual Walk, Boat Ride, Celebrity Gala, Dinners, and plenty of other fun events.  Reserve your space early!
  • Tag us On Social Media with #LoveYou10 or #CristianRiveraFoundation, we will follow you when you do!
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available at smile.amazon.com, Barnes and Nobile and on our website CristianRiveraFoundation.org

Amazon Smile
Barnes & Noble
Cristian Rivera Foundation

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space
Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
and Vito Bruno.

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez,
Vanessa Rodriguez and William Pla.

space

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space

Supporters:
David Rodriguez, Ginalisa Monterroso,
and Karla De Epstein

 

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Guidestar
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020

Celebrites Spotted at our 10th Annual Cristian Rivera Foundation Celebrity Gala

 

 

Cristian Rivera Foundation Committee Member and Actor Keenan Thompson and Fashion Haunts Magazine host Samantha Leonardis at the 10th Anniversary Cristian Rivera Foundation Celebrity Gala at Capitale in New York City.
Cristian Rivera Foundation Committee Member and Actor Keenan Thompson and Fashion Haunts Magazine host Samantha Leonardis at the 10th Anniversary Cristian Rivera Foundation Celebrity Gala at Capitale in New York City.

 

Bachelor star Corinne Olympios and boyfriend Jon Yunger arrive at the 10th Anniversary Cristian Rivera Foundation Celebrity Gala at Capitale in New York City.

 

Featured on  Star Magazine, Radar OnlineNational Enquirer, Too Fab and OK Magazine.

 

Cristian Rivera Foundation Committee Member,
Kenan Thompson wins his 1st Emmy!

 

 

The Cristian Rivera Foundation would like to congratulate long time supporter & committee member, Kenan Thompson on winning his first Emmy! We are extremely proud of all of Kenan’s accomplishments in Entertainment and we are also grateful for his tireless dedication & benevolence to CRF and curing DIPG.

Cristian Rivera Foundation
June/July 2018 Newsletter

June/July 2018 NewsletterJune/July 2018 Newsletter

Cristian Rivera Foundation 2018
June/July Newsletter

Summer is here, and it is hot hot hot! The Cristian Rivera Foundation team has been working extremely hard over these past 2 months to raise awareness for DIPG. As July comes to a close, here’s what the Cristian Rivera Foundation has been up to:

Saturday, June 9th 2018: The 1st Annual Cristian Rivera Foundation “Full Steam Ahead” 5K Walk/Run took place in Van Cortlandt Park in the Bronx and it was a success. Over 100 registered walkers showed up and as a result, we gave Dr. Mark Souweidene and Dr. Jeffrey Greenfield a check to help further their research in neuro-oncology.

You can check out the pictures on our website at: http://cristianriverafoundation.org/crf5kwalkrun/ .

Saturday, July 21st 2018: The 3rd Annual Cristian Rivera Freestyle Flashback Boat Ride took place at Pier 83 and it was a blast. Even though it was raining, we danced the night away and almost reached full capacity. All of the performers were amazing. You can look at the pictures on our website at: http://cristianriverafoundation.org/3rdCRFBoatRide/index.html  

In addition, our first DIPG survivor, Lisha Ayala, has no sign of tumor growth as per the results of her quarterly MRI results. Because of your generosity, Lisha has been able to grow into a young adult and show the world we can beat DIPG. Your continuous support and dedication are paying off as we begin to find a cure for DIPG.

Next month, CRF Founder John “Gungie” Rivera will host his Birthday Bash Boat Ride on Saturday, August 25th. The event starts at 7pm and a portion of the proceeds will benefit the Cristian Rivera Foundation. Join us, hosts Alizay and Speedy, DJ Ted Smooth, DJ Big Paul, DJ Anthony Mangini, DJ Glenn Friscia, and DJ Johnny Famolari for an amazing night. Special performances and more DJs will be announced. Tickets are $25 until August 9th, $30 until August 16th, $35 until August 23rd and $40 until the event. Buy your tickets soon.

We are proud to announce that next month, The Children’s Book, “Cristian’s Journey”, a story inspired by Cristian Rivera will be released. The book will honor Cristian’s legacy and will educate the public about DIPG and our commitment to curing the disease. As always, 100% of the proceeds of the book will be donated to Weill-Cornell Medical Center and their clinical trials.

Mark your calendars for The 10th Annual Cristian Rivera Foundation Celebrity Gala. The event takes place on Wednesday, November 14th.  Join us as we come together to celebrate a decade of work in the DIPG community and honor some very special people.  This event promises to be our biggest gala yet. You can now purchase tickets on our website here: http://cristianriverafoundation.org/events.html .

We are thrilled to announce 2 new Committee Friends.

We are very proud to announce our new Committee Friend Janie Chamberlain. Janie was born in Queens, New York, raised in Somerset County, New Jersey and graduated in 1999 from Rutgers University with a Bachelor of Arts in Art History & Italian Language. Having left a career in financial markets sales at Bloomberg LP to raise her family, she has continuously sought impactful ways to apply her professional strengths. Over the course of the last 16 years as a stay at home parent of three beautiful children, Janie has sought fulfilling ways to collaborate on directives that meaningfully serve, grow and enrich her Westchester County, New York community. As a recently elected Trustee of the Briarcliff Manor Union Free School District in Briarcliff Manor, New York she is honored to have the opportunity to demonstrate how connected, present, passionate and committed she is in advocacy of the youth of her community.

Janie Chamberlain says, “As a tireless advocate for children in my own community, I am honored beyond measure to be a piece of the puzzle that makes the Cristian Rivera Foundation a force to be reckoned with against Diffuse Intrinsic Pontine Glioma (DIPG). The passion that John Gungie Rivera exhibits in honor of his beloved son Cristian is undeniable and infectious. Together the Cristian Rivera Foundation can, and will, accomplish amazing feats. Cristian’s spirit carries on in those of who will continue to challenge each other to meet bigger and better goals every day.”

Our 2nd new Committee Friend Flora Montes is a proud Latina from the South Bronx whose entrepreneurial, philanthropic, and artistic endeavors make her a force to be reckoned with. She is the Founder of Bronx Fashion Week and culinary school graduate. She is also a published poet who has performed and produced shows for the famed Nuyorican Poet’s Café and other NYC venues. Flora serves on the Bronx Museum of The Arts’ Community Advisory Board and the Board of Directors for the American Cancer Society. She uses her artistic abilities to inspire and support vulnerable communities such as homeless children and victims of domestic violence. Her generosity and vibrant spirit have garnered her many awards and commendations. Some of her accolades include being named One of the 25 most influential woman in NYC by the Bronx Times; being hailed as a South Bronx ambassador of culture by the NY Times and a Gamechanger Entrepreneur by Lord & Taylors Wacoal America; as well as recognition from local and city government officials like Councilman Andy King and Mayor Bill de Blasio for her efforts in leading Bronx Fashion Week.

Flora Montes says, “I had the pleasure of meeting John Rivera through a job search on a telephone call which turned into a 2-hour conversation about our lives and the loss of a child since I too had experienced that loss & while it was through different means the pain of losing a child is one and the same. I can honestly say an instant genuine friendship formed, I saw first hand his passion to honor his son’s memory and the determination to find a cure for DIPG and I knew in my heart that I had to help not only because everything happens for a reason but because I believe that our meeting was meant to be for a greater purpose. I also saw first hand when I volunteered at the gala in 2017 the hard work that goes behind the Cristian Rivera Foundation and the love and compassion that goes behind assisting these parents dealing with this deadly disease and in some way, my daughter would be smiling from heaven in complete agreement as it is my mission to honor her also through my actions.”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
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Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
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Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez,
Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
Tony Ferrara
and Vito Bruno.

Committee Friends:
Dr. Manuel A. Moran, Dennis Rodriguez,
Edward Caban, Flora Montes, Janie Chamberlain,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez and William Pla.
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Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
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Supporters:
Ami Ferrara, Ben Velazquez, David Rodriguez,
Ginalisa Monterroso, Teddy Mendez
and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Once again No Growth,
No activity on Lisha Ayala’s July 2018 MRI

CRF BREAKING NEWS- The Cristian Rivera Foundation is pleased to announce that Lisha Ayala received her quarterly MRI results and she has shown No sign of Tumor Growth. What does that mean? It means that your generosity has helped us underwrite the clinical trials that she is participating in. It means, that for the last 5 and a half years Lisha Ayala has been able to grow into a young adult and show the world that we can beat DIPG. Your support, your generosity and your dedication to the Cristian Rivera Foundation has made Lisha’s journey possible! We thank you, Lisha Thanks you, and the families impacted by DIPG thank you.