News & Press

Congratulations Dr. Souweidane

Dr. Mark Souweidane

Congratulations to Dr. Mark Souweidane, whose highly anticipated results of the first-ever dose escalation study using convection-enhanced delivery (CED) in patients with DIPG, were published in Lancet Oncology. Thank you Dr. Souweidane, for continuously working hard towards finding a cure for DIPG. “Full Steam Ahead”

Follow Here to Read the CED Letter

Cristian Rivera Foundation
May 2018 Newsletter

 

May 2018 Newsletter

Walk or Run   Become a Virtual Walker

Create a Team   Join a Team

Sponsor   Volunteer   Donate

May 2018 Newsletter

May 2018 Newsletter

Cristian Rivera Foundation 2018
May Newsletter

April showers bring new Cristian Rivera Foundation events. All the hard work we’ve put into raising DIPG awareness in 2018, is finally starting to blossom. As things start to blossom and the temperature continues to rise, approaching with “Full Steam Ahead” is the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K.

The 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K is making a stop at Van Cortlandt Park in the Bronx on Saturday, June 9th at 9am. We’re looking to fill up the seats in our train so, bring your family, friends and colleagues together and join us while we run/walk for a DIPG cure. Van Cortlandt Park is 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. Entry fee is $25 and includes a 5K t-shirt. We encourage participants to fundraise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. Please help us beat DIPG. To sign up to participate in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Become a Virtual Participant in the 5K. If you live outside the Tristate area or going to be out of town, become a Virtual Participant! The entry fee is $25 and includes a 5K t-shirt. Take a picture with your t-shirt and e-mail it to crf5K@cristianriverafoundation.org and we will post it on our site. We encourage participants to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fund-raise as much as you can! Every dollar you raise will help us sustain and grow our programs. To sign up as a Virtual Participant in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 5K t-shirt. We encourage each team member to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. To create a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Sponsor the event. To sponsor the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/sponsorship/
  • Become a Volunteer. To become a volunteer for the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/volunteer/.

  • Donate. Help support raising funds for DIPG by donating. To make donations please visit http://cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference! Hop on board and together we can help the 300 children diagnosed each year.

Our foundation would like to acknowledge Goya Foods for being the Presenting Sponsors for the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K. Goya is our largest corporate sponsor and are Platinum Sponsors for our Annual CRF Celebrity Gala. Here at the foundation, we appreciate Goya’s dedication to our cause.

We would also like to give a big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health and Patrick B. Jenkins & Associates for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. Want to follow in these sponsor’s footsteps and run/walk for DIPG awareness? Visit cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase tickets to the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat Ride on Saturday, July 21, 2018 at 7:00 p.m., featuring a performance by Freestyle Diva Lisette Melendez. Get your ticket $30 ticket today, you don’t want to miss out on this amazing evening or discount deal. After June 1st the tickets will go up to $35 and will increase to $40 after July 1st. Don’t wait and purchase your tickets today here: cristianriverafoundation.org/events.html#3rdboatride.

Whether you are sponsoring, participating, volunteering, or donating, you are helping in making a difference in the lives of the 300 children diagnosed with DIPG every year. Hop on board and help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez,
Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Flora Montes, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy Mendez and William Pla.

spaHonorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Friend on Facebook

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Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 April Newsletter

 

March 2018 Newsletter
Participate   Walk or Run   Become a Virtual WalkerCreate a Team   Join a Team
Sponsor   Volunteer   Donate
March 2018 NewsletterMarch 2018 Newsletter


Cristian Rivera Foundation 2018
April Newsletter

As we enter the season of new growth in nature, we’re also celebrating the growth of our foundation. We’re halfway through April, and busy is the word of the month here at the Cristian Rivera Foundation!  As the warm weather approaches, so does our first ever Cristian Rivera Foundation 5K Walk and Run.

The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate in the 5K and take a stand against DIPG. To sign up to participate in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Become a Virtual Participant in the 5K. Want to participate but live outside the Tristate area or going to be out of town? Become a Virtual Participant! The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. Our foundation asks for all Virtual Participants to take a picture with their t-shirt and e-mail it to crf5K@cristianriverafoundation.org for display on our website. We also encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate as a Virtual Runner/Walker in the 5K and take a stand against DIPG. To sign up as a Virtual Participant in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To create a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Sponsor the event. To sponsor the 5K please visit cristianriverafoundation.org/crf5kwalkrun/sponsorship/.
  • Become a Volunteer. To become a volunteer for the 5K please visit cristianriverafoundation.org/crf5kwalkrun/volunteer/.
  • Donate. Help support raising funds for DIPG by donating. To make donations please visit cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference!

Our foundation would like to acknowledge some longtime supporters and the Sponsors for the 1st Annual CRF “Full Steam Ahead” 5K. A big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. If you are interested in Sponsorship/Advertising opportunities go to cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase silent auction items that are available for bidding on cristianriverafoundation.org/auction. We have a great variety of things such as an NY Yankees on field experience and an autographed Marc Anthony microphone. Also, our past items have included Four (4) Premium Tickets to see Frankie Valle at the Mohegan Sun Arena, plus a meet and greet and a 5 Course Italian Cooking Class at your home for 10 People, with Renown Chef Nick Lucci. These auction items are incredible and one can purchase them in efforts to eradicate DIPG.

As one can see, whether you are sponsoring, participating, volunteering, donating or purchasing auction items, you are helping in making a difference. Help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella


Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on Twitter
Friend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 March Newsletter

 

Cristian Rivera Foundation
March 2018 Newsletter

March 2018 Newsletter


Cristian Rivera Foundation 2018
March Newsletter

 

With the days getting longer and springtime just around the corner, The Cristian Rivera Foundation is leaping into March with a renewed sense of excitement!  As we forge ahead into a season that celebrates life and regrowth, we ask you to join us in working to save the lives of DIPG children around the world.

Our foundation has a variety of events coming up, including our first ever Cristian Rivera Foundation 5K Walk and Run. The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 08:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand with us by taking a walk or run and help give our children an opportunity to fulfill their dreams.  Let’s cure DIPG together.

Another event you should also be excited about is our 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride on Sat. July 21st.  Join us as the New York skyline serves as a backdrop and music is provided by New York’s top DJ’s.  We also have a live performances by Freestyle Diva Lisette Melendez scheduled and surprise celebrity guests.  Party for a cause with us.

We are also preparing for the release of The Children’s Book, “Cristian’s Journey”, a story inspired by Cristian Rivera.  The book will honor Cristian’s legacy and will educate the public about DIPG and our commitment to curing the disease.  As always, 100% of the proceeds of the book will be donated to Weill-Cornell Medical Center and their clinical trials.

We are also pleased to announce that the 10th Annual Cristian Foundation Celebrity Gala which will take place on Wednesday, November 14th.  Join us as we come together to celebrate a decade of work in the DIPG community and honor some very special people.  This event promises to be our biggest gala yet.

Since the year started, our foundation has been working tirelessly to continue giving DIPG the voice it deserves. As a result of our hard work, The Cristian Rivera Foundation was awarded a Platinum Seal on GuideStar.org. GuideStar.org is the non-profit industry leader in analysis and public information and issues their rating based on transparency and the positive activity conducted in the non-profit community. Not only does our foundation have a Platinum Seal on GuideStar.org, The Cristian Rivera is also the recipient of the 2018 Top-Rated Great Nonprofits Award from Great Nonprofits. As you can see, our foundation takes pride in the work we do and we’re honored to have received such prestigious awards for our hard work, commitment and dedication.

A lot going on at the Cristian Rivera Foundation so mark your calendars for the following special events:

Saturday June 9th, 2018 – 1st Annual Cristian Rivera 5K Walk/Run
Saturday July 21st – 3rd Annual Cristian Rivera Foundation Freestyle Boat ride
November 14th – 10th Annual Cristian Rivera Foundation Celebrity Gala
Summer 2018- Release of “Cristian’s Journey” children’s book

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”
Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Friend Modesto Lacen.

Who is Modesto Lacén.
I’m an actor and producer with 25 years of experience in Theater, TV, Film and Radio in Puerto Rico, United States and Colombia. Besides my artistic career I believe in contributing to society through the work I can do as a responsible citizen, I firmly believe that a better world is possible. Is it for that reason that I’m a proud member of the Board of Directors of Taller Salud in my hometown Loiza, PR and the Cristian Rivera Foundation. 

What does it mean to you to be a part of the Cristian Rivera Foundation?
As the son of a successful owner of various Clinical Laboratories in Puerto Rico, I know the importance of living a healthy and productive life. Been a part of the Cristian Rivera Foundation is rewarding for me because in the effort we do as a Foundation, we are making a real difference in children’s life. The support we give to doctors and the families with children with DIPG is invaluable. 

What is your proudest moment as a Cristian Rivera Foundation Committee Friend?
My proudest moment as a Committee Member was when I had the honor of participating in one of our Galas with the son of one of my heroes, Roberto Clemente Walker. Sharing that special moment with Roberto Clemente, Jr was a pivotal moment that reaffirms my mission as part of the Cristian Rivera Foundation. To be of service for the well being of our society.

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
spaceCommittee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.


Director:

Vicky Estrella

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez, Teddy “Tedsmooth” Mendez and William Pla.
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on TwitterFriend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation Awarded
Platinum Seal from GuideStar

 

The Cristian Rivera Foundation is continuously working hard to create awareness, fund groundbreaking research, and trials, and economically support families impacted by DIPG. In result of our hard work, our foundation was awarded the Platinum Seal of Transparency from GuideStar, as a demonstration of our commitment to nonprofit transparency and accountability. GuideStar is the non-profit industry leader in analysis and public information and issues their rating based on transparency and the positive activity conducted in the non-profit sector.

Our foundation has worked hard to showcase our progress towards our mission, and our long-held belief in being transparent about our work. Here at the Cristian Rivera Foundation, we’re proud to have received the prestigious Platinum Seal of Transparency from GuideStar. We know that Guidestar is a useful tool for donors and we will continue to update the profile to make sure it’s an accurate representation of the work we do. As a GuideStar Platinum participant, we will use their platform to share a wealth of up-to-date information about our work to their immense online audience of nonprofits, grantmakers, individual donors, the media, and to our supporters.

We at the foundation encourage you to check out our profile on GuideStar to see what we’re all about. Stay updated with our exciting initiatives, as we are thrilled to have another platform for communicating our advancement and progress. Click here to view the Cristian Rivera Foundation GuideStar profile.

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating. Without you, our foundation wouldn’t have received such a reputable title. Make sure to subscribe to our newsletters to stay updated on our upcoming events.

 

 

Cristian Rivera Foundation is honored to have received the 2018 Top-Rated Great Nonprofit.

 



The Cristian Rivera Foundation has been honored to have received the 2018 top-rated status from GreatNonprofits, the leading provider of user reviews of nonprofits. GreatNonprofits is dedicated to inspiring and informing donors and volunteers about nonprofits, and enabling nonprofits to show their impact. The Top-Rated Nonprofit Award is the based on the ratings and number of reviews that the Cristian Rivera Foundation received from volunteers, partners, educators, and families for outstanding performance. “This award is meaningful to us as it is based on the personal experiences of our volunteers and supporters. Our foundation is so humbled to not only have impacted the lives of those affected by DIPG but some our volunteers as well” said Founder John “Gungie” Rivera.

All of us at the Cristian Rivera Foundation would like to extend a special thanks to all our supporters who have helped us earn this very prestigious award. Receiving the 2018 top-rated status from GreatNonprofits is truly special because only a small percentage of nonprofits get this award. We are proud of our accomplishments and will continue working hard to raise DIPG awareness in honor of Cristian Rivera.

Click here to view our page on GreatNonprofits and leave a review.

Cristian Rivera Foundation
2018 February Newsletter

Cristian Rivera Foundation
February 2018 Newsletter

February 2018 Newsletter
February 2018 Newsletter


Cristian Rivera Foundation 2018
February Newsletter

February is a special month; A time to display your feelings for your friends and family for their love and support throughout the year. This February has been an amazing month for the Cristian Rivera Foundation, and that’s all because of your love and support of our foundation.

This past week, Lisha Ayala, A DIPG patient who is participating in the clinical trials that the Cristian Rivera Foundation is funding, received her quarterly MRI results.  The tests were stable with no activity or tumor growth!  This is her 5th year living with DIPG, providing the medical community an opportunity to learn more and make monumental strides in research.

Lisha continues to live the life of a normal teenager and has given us hope that we are close to a cure.  This is all possible through your love and support of our mission.

The Cristian Rivera Foundation also hit another milestone this month by receiving a Platinum status on GuideStar.org

GuideStar.org is the non-profit industry leader in analysis and public information.   Guidestar.org issues their rating on transparency and the positive activity conducted in the non-profit community.

The Cristian Rivera Foundation is honored to be awarded a Platinum Status for our efforts, commitment and transparency.

One can only be excited for what’s to come the next couple of months. Our foundation has so many events planned for 2018.  We have our Raffle Project, the 1st Annual Cristian Rivera Foundation “Full Steam Ahead 5K” Sat June 9th, the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride Sat July 21st, The Children’s Book “Cristian’s Journey” will be out in the Spring and the 10th Annual Cristian Foundation Celebrity Gala will take place on Wednesday, November 14th.

Please visit our website at cristianriverafoundation.org and stay connected with all of our events, view our gallery and sign our guestbook to let us know you stopped by!

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating. Lastly, all of us at the Cristian Rivera Foundation wish you a very happy Valentine’s Day! Show love to our foundation with your kind donation today!

Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Member Paul Pristavec. Paul has been an incredible member.

Who is Paul Pristavec?
Paul Pristavec, a Staten Island native father of 6, is a Wealth Management Advisor at Merrill Lynch. He joined Merrill Lynch in 1992 and has been advising high net worth individuals and wealthy families since 1996. He is a parishioner of Our Lady Star of the Sea Roman Catholic Church and is involved in charitable work for the Archdiocese of New York.  Paul Coaches CYO basketball at Our Lady Star of the Sea. Paul loves to take his children to all their sporting events. Paul and his wife Dana reside in the Tottenville section of Staten Island.

What does it mean to you to be a part of the Cristian Rivera Foundation?
Being a part of the Cristian Rivera Foundation is rewarding in so many ways. Being a father of 6, I can’t imagine what it must feel like to lose a child. It means so much to me to be a part of an organization that is giving back and making a difference in the lives of so many children and families.  

What is your proudest moment as a Cristian Rivera Foundation Committee Member?
My proudest moment as a Cristian Rivera Foundation Committee Member was on Wednesday, February 7, 2018, when I learned about Lisha’s progress. Lisha’s MRI results came up favorable and I’m honored to have been a part of that. This is a reminder of why I am involved in the Cristian Rivera Foundation and put in the time that I do. Lisha is proof that we are headed in the right direction and that one day, we will not fear DIPG.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To give a donation, please visit http://cristianriverafoundation.org/donation.html
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundationand like us on Facebook at www.facebook.com/crisitanriverafoundation to stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
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Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

spac Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.
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Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
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Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Once again No Growth,
No activity on Lisha Ayala’s Feb 2018 MRI

CRF BREAKING NEWS- The Cristian Rivera Foundation is pleased to announce that Lisha Ayala received her quarterly MRI results and she has shown No sign of Tumor Growth. What does that mean? It means that your generosity has helped us underwrite the clinical trials that she is participating in. It means, that for the last 5 years Lisha Ayala has been able to grow into a young adult and show the world that we can beat DIPG. Your support, your generosity and your dedication to the Cristian Rivera Foundation has made Lisha’s journey possible! We thank you, Lisha Thanks you, and the families impacted by DIPG thank you.